tag:blogger.com,1999:blog-21609198.post2370365697332543454..comments2023-07-27T13:52:37.502-04:00Comments on Cindy's Low Carb Life: My RA/PRA diagnosisAlcinda (Cindy) Moorehttp://www.blogger.com/profile/14950698583878546323noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-21609198.post-2842696518380488612009-05-08T13:32:00.000-04:002009-05-08T13:32:00.000-04:00Carolyn, I also had several diagnoses, including g...Carolyn, I also had several diagnoses, including gout and bursitis, until my primary doc finally sent me to my current rheumatologist, who diagnosed me immediately. I've also had what was thought to be plantar fasciatis, but my RA said no. He says I likely have tendonitis involvement when the joints act up. <br /><br />I am currently only taking Doxycycline for the RA and Diclofenac (Voltaren) asAlcinda (Cindy) Moorehttps://www.blogger.com/profile/14950698583878546323noreply@blogger.comtag:blogger.com,1999:blog-21609198.post-38778599765274986042009-05-08T11:11:00.000-04:002009-05-08T11:11:00.000-04:00Cindy-I stumbled on your blog and almost fell over...Cindy-I stumbled on your blog and almost fell over. I never heard of anyone with the same symptoms I've been having for three years, now. The local doc's couldn't get past gout, but I knew that wasn't it. My diagnosis, so far, is myofascial pain syndrome. It feels like shards of glass and isn't always in a joint. Nothing ever hurt more, and showed less. Now I ask people if they ever heard Mrs Esphttps://www.blogger.com/profile/13027481861345346296noreply@blogger.comtag:blogger.com,1999:blog-21609198.post-35922242255790927992008-08-14T20:56:00.000-04:002008-08-14T20:56:00.000-04:00Lois....please check out this link! http://www.roa...Lois....please check out this link! http://www.roadback.org/<BR/><BR/>I'm planning on blogging about The New Arthritis Breakthrough: The Only Medical Therapy Clinically Proven to Produce Long-term Improvement and Remission of RA, Lupus, Juvenile RA, Fibromyalgia, ... & Other Inflammatory Forms of Arthritis and AP therapy, but things have been kind of wild here. <BR/><BR/>Also check back Alcinda (Cindy) Moorehttps://www.blogger.com/profile/14950698583878546323noreply@blogger.comtag:blogger.com,1999:blog-21609198.post-30126670157022353042008-08-14T09:06:00.000-04:002008-08-14T09:06:00.000-04:00Hi, Cindy...I was diagnosed with RA 2 years ago......Hi, Cindy...I was diagnosed with RA 2 years ago...tested postitive w/RA factor. However, for the past 18 months I SUFFERED with joint pain that traveled all over my body. Yesterday, finally, my RA doc said it was PRA and increased my dose of methotrexate and put me on prednisone. I feel your pain and hope someday RA and PRA will be a thing of the past. LoisAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-21609198.post-9830906245454684412008-07-05T17:38:00.000-04:002008-07-05T17:38:00.000-04:00Thanks for commenting Carol! I do try to avoid all...Thanks for commenting Carol! I do try to avoid all grains when following my plan. I sometimes have wraps and occasionally toast with breakfast, but I try to avoid all grains for the most part. <BR/><BR/>Lately, however, I've been off plan more than on....but I've also been doing good, so who knows.Alcinda (Cindy) Moorehttps://www.blogger.com/profile/14950698583878546323noreply@blogger.comtag:blogger.com,1999:blog-21609198.post-81552409187436922252008-07-05T15:36:00.000-04:002008-07-05T15:36:00.000-04:00Hi Cindy,Just re-found your blog today. Sorry abo...Hi Cindy,<BR/><BR/>Just re-found your blog today. Sorry about your health issues!<BR/><BR/>My brother, who lives in Canada, was diagnosed with your disease and also celiac disease a few years ago. Once he gave up eating wheat or gluten in any form, his PRA symptoms also vanished! <BR/><BR/>My Canadian sis, who was diagnosed with fibromyalgia (another autoimmune disease) has had a huge Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-21609198.post-82330724798196819722008-05-18T13:37:00.000-04:002008-05-18T13:37:00.000-04:00Hi Anna...yes, I did see Dr Davis's blog on the su...Hi Anna...yes, I did see Dr Davis's blog on the subject, but wanted to see if Dr Briffa would comment also. There are a couple of people on a support forum that believe this and I'm trying to get enough "ammunition" to try and convince them otherwise! <BR/><BR/>Heck, even if there's something to it, which I doubt, I'd still rather have RA symptoms than cancer or heart disease!Alcinda (Cindy) Moorehttps://www.blogger.com/profile/14950698583878546323noreply@blogger.comtag:blogger.com,1999:blog-21609198.post-30313035204919565622008-05-18T11:57:00.000-04:002008-05-18T11:57:00.000-04:00Yes, zapped as in electrical or shooting pain. I l...Yes, zapped as in electrical or shooting pain. I luckily rarely get those anymore. It's unnerving to reach for something like a door knob and get that. <BR/><BR/>My serum was negative back then which is why I thought the diagnosis was wrong. (No internet back then but I lived in the library and researched RA). <BR/><BR/>My brother's a medical professional and when I got colitis he said he'd bet Carol Bardellihttps://www.blogger.com/profile/14414701008693189487noreply@blogger.comtag:blogger.com,1999:blog-21609198.post-90150210165199535522008-05-18T11:32:00.000-04:002008-05-18T11:32:00.000-04:00Hi Cindy,We seem to frequent the same blogs. I us...Hi Cindy,<BR/><BR/>We seem to frequent the same blogs. I used to live in the Triangle area of NC so I always recognize your name. I saw your recent comment on Dr. Briffa's blog, asking about his thoughts on the Marshall Protocol in relation to your PA. Did you see Dr. Davis's posts/comments about the MP on his Heart Scan blog? He dismisses it, as do others who I find quite credible. <BR/><BRAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-21609198.post-55936938885303609962008-05-16T22:09:00.000-04:002008-05-16T22:09:00.000-04:00Lots of mis-diagnoses with AI diseases!! I am "ser...Lots of mis-diagnoses with AI diseases!! I am "sero-positive" in that my Rheumatoid factor and Anti-CCP are both positive, but so far there is no joint damage and my symptoms are not consistently like RA symptoms. Just saw my doc today, and I'm going to be continuing the anti-biotic, at least for another 3 months. <BR/><BR/>CP isn't enough, huh? It seems that that's fairly common....many people Alcinda (Cindy) Moorehttps://www.blogger.com/profile/14950698583878546323noreply@blogger.comtag:blogger.com,1999:blog-21609198.post-57351171350134536322008-05-16T15:21:00.000-04:002008-05-16T15:21:00.000-04:00Cindy, I'm sorry to here about your PRA. It runs i...Cindy, I'm sorry to here about your PRA. It runs in my family too. You're a strong person and I know you'll cope. You're in my prayers.<BR/><BR/>I was misdiagnosed at 20 with RA (by my GP) mostly based on family history as my grandmother and aunt had it. I was suspicious because I never had redness or swelling. Later a rheumatologist diagnosed intermittent tendonitis because it's common in peopleCarol Bardellihttps://www.blogger.com/profile/14414701008693189487noreply@blogger.comtag:blogger.com,1999:blog-21609198.post-54366863841906612782008-05-13T09:53:00.000-04:002008-05-13T09:53:00.000-04:00Thanks Suzique!Thanks Suzique!Alcinda (Cindy) Moorehttps://www.blogger.com/profile/14950698583878546323noreply@blogger.comtag:blogger.com,1999:blog-21609198.post-20600667064469866692008-05-13T09:30:00.000-04:002008-05-13T09:30:00.000-04:00Wow, Cindy, you HAVE been through it! Sorry to hea...Wow, Cindy, you HAVE been through it! Sorry to hear about the PRA; I have lots of RA in my family but so far have been spared. Hope you're able to get it under control soon!<BR/>Suzique<BR/>fullwaisted.blogspot.comSuzanne Johnsonhttps://www.blogger.com/profile/14180604715572075576noreply@blogger.com